The Boy Was Born Without A Nose

Baby Eli is one of nearly 40 rare cases in the world with a birth defect without a nose.
Preterm birth, weighing only 2.9 kg at birth, baby Eli (USA) has an additional disability without a nose. Out of the womb, Eli had to breathe through her mouth with the help of an oxygen mask. Parents, family and doctors fear that the baby will not be able to get through the first night

. But that little angel has done wonders.
The first moment she saw the baby when the midwife held the baby on her chest, mother Brandi McGlathery was startled with panic. She did not believe in the anomaly right before her eyes The newborn baby, the little son the family has been waiting for for a long time, has no nose.




The baby boy Eli is one of the rare cases of birth without a nose in the world. Photo: minutes of lying alone in the delivery room of South Baldwin Hospital (Alabama, USA) after the doctor took the baby out, with Brandi as long as a century. Trying to convince herself that what happened was just an illusion, her fear lingered in her mind. When the doctor returned to her husband standing by her tears, the mother broke into tears before any confirmation could be made.
Eli has an extremely rare syndrome that so far the world literature has recorded only 37 cases. The probability of a baby being born with this syndrome is very low, only 1/197 million. In addition to a defect in the structure of the external nose, Eli did not even have a nasal cavity or smell
That evening turned the sprawling conversation of the couple about the child they had painted in their heads into a painful memory.



Brandi McGlathery hopes the baby will have curly blond hair, and father Troy Thompson wants him not to inherit his raw nose. No one expected fate to force the baby to carry this different disability on his face.
Having to breathe through her mouth as soon as she was born, Eli underwent surgery to open the trachea to aid in breathing at the age of 5 days. Photo: On the night of her birth, Eli was transferred to the special care area of the Alabama Maternal and Child Hospital. Worried about her baby, the new mother stays awake at night to call to check every 45 minutes. She feared that her newborn son would be stripped of her hand by death.
Luckily smiling as little Eli passed the first night in the happiness of his family and the team of nurses and doctors taking care of him. Baby also underwent surgery to open the trachea to support breathing at the age of 5 days.




“Everything is wonderful. Now the baby is much better ”, the mother happily shared as the son's health progressed well. Brandi also breastfed Eli when advised by her doctors.
At the end of the first 4 weeks living in the hospital, young Eli returned to his parents' family and met his sister. Mother Brandi eagerly takes care of her son at home after a time with so many emotions. Because of a nose defect, Eli cries without sound, the mother has to be with her almost every time.
Sharing about the future of nose plastic surgery for her baby, the mother said that because her child's palate was not fully developed, it could not be done immediately. Your baby will be taken to see cranial specialists for exams every 3-6 months at least for the next 10 years.




According to the mother, this syndrome affects the pituitary, so you have to wait until Eli passes puberty. Until then, she wanted to keep her away from any unnecessary plastic surgery. “Right now she is very perfect and beautiful in her own way. We will wait until the baby is aware of what he wants, ”the mother turned a loving gaze toward the baby lying in the cradle sleeping peacefully.
With a defect, the baby Eli is still adorable in his own way. The baby's story is being sympathized and shared by many people. Photo: The boy Eli's inspirational story shared on Eli's Story page has received a lot of attention from all over the world, along with relatives and friends of the family. To date, this story has received more than 63,000 likes.



Child fundraising page on Go Fund Me was created and received more than 4,300 USD from charity.
“I am very happy to receive encouragement from everyone. They are great ”, Ms. Brandi expressed her gratitude to the care and concern from the community.
Searching on the Internet, Brandi discovered that a mother in Ireland named Gráinne Evans had a child with the same syndrome. Updating the Facebook page, posting pictures, reading encouraging comments as well as getting in touch with her situation, gives mothers more motivation in the journey to take care of her son, which is still difficult.
The mother's biggest worry at this time is that one day the baby comes home and cries at being ridiculed and teased. “I don't want anyone to hurt her.



The more they don't want them to show pity, ”the mother said.
For her, happiness is simply the moments of feeling the warmth when the baby's tiny hand takes his finger, the times the baby looks around and searches when hearing their parents' voice and then smiles and recognizes the friendly faces. attached.
"You know, with more than 10 women who have been doctors taking care of babies over the past month, babies still realize who the mother is," Brandi said.
The early days of the boy's life had no nose
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